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Resources about HLH

Access a variety of resources for you and your patients

Here you can find a collection of materials about HLH for healthcare professionals, patients, and their caregivers.

 
Investigating HLH Podcast
Investigating HLH podcast icon

Listen to Investigating HLH, a podcast series discussing various topics related to HLH. Learn more about the signs and symptoms, the diagnostic challenges, and strategies for managing this rare and fatal disease in your patients.

In each episode, an expert on HLH shares their insights and highlights important considerations for identifying and treating HLH. The fight against HLH is a difficult one, but knowing what to look for could save lives.

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Episode 1
Episode 2
Episode 3

Downloadable resources

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Caregiver Discussion Guide
Caregiver Discussion Guide
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This is a discussion guide for caregivers who may have questions about their child’s HLH diagnosis and the road ahead. It includes a list of questions that they may have about the process, which they can speak with their doctor about for more information.

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Transplant 101
Transplant 101
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This flash card provides a quick overview of bone marrow transplants to caregivers. It includes an explanation of what they are, when they are needed, and the process involved in preparing and receiving one.

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Patient Discussion Guide
Patient Discussion Guide
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The patient discussion guide is a resource for patients and caregivers to track any questions or notes they may have during discussions with their doctors. It includes common questions they may have throughout different stages of their journey.

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Managing HLH icon

Managing HLH

Learn about the management strategies for HLH.

Explore management