HLH resources icon

Resources about HLH

Access a variety of resources for you and your patients

Here you can find a collection of materials about HLH for healthcare professionals, patients, and their caregivers.

 
Investigating HLH Podcast
Investigating HLH podcast icon

Listen to Investigating HLH, a podcast series discussing various topics related to HLH. Learn more about the signs and symptoms, the diagnostic challenges, and strategies for managing this rare and fatal disease in your patients.

In each episode, an expert on HLH shares their insights and highlights important considerations for identifying and treating HLH. The fight against HLH is a difficult one, but knowing what to look for could save lives.

Listen
Episode 1
Episode 2
Episode 3

Downloadable resources

To quickly sort through the available resources, use the filter below.

HLH Advocacy Guide
HLH Advocacy Guide
Download

The Dragon Book is a guide for patients and their caregivers that explains HLH in a way that is child-friendly. It also contains more in-depth information for caregivers who would like to have a deeper understanding of HLH.

Download
Managing HLH icon

Managing HLH

Learn about the management strategies for HLH.

Explore management